It's in the name.....
Coming Soon!
A blog dedicated to the life, struggles and ups and downs of living with a Xia-Gibbs Syndrome diagnosis.
What is Xia-Gibbs Syndrome? How does it present itself? How has it changed our lives?
More coming soon....
A look what Xia-Gibbs Syndrome has meant for us and our family.
Why Fundraise?
Why fundraise? It's simple. Did you know.. A 2014 study showed poverty is especially high among families where there is a...
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"This is my family. I found it, all on my own. Is little, and broken, but still good." - Stitch Walt Disney Pictures ;... -
Parents? Have you ever wondered what your child will be when they grow up? Whether they will get married? Have kids? Be a ballerina like ... -
I'm just so angry all of the time. I can't stop. I look at people waiting for a diagnosis and I get angry because they...
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